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Helpful Hints for Respiratory
Patients
INTRODUCTION
The following nonmedical hints and suggestions are intended to ease
living with Chronic Obstructive Pulmonary Disease (COPD). They have been
assembled from actual daily practice by members of the Respiratory Club, a
support group for Pulmonary patients and their families, jointly sponsored
by the American Lung Association of Connecticut and Gaylord
Hospital in Willingford, Connecticut.
We, the club members,
offer you ideas we have had to learn, in large part, by ourselves. We hope
these suggestions may help speed your adjustment to a more secure,
leisurely and pleasant way of life.
PACING
Pacing ourselves is
one of the most important things we all have to learn. A prime
consideration in regulating the tempo of daily living should be the
awareness that your limits will fluctuate from day to day or even hour to
hour.
There will be times
when you will wake up and know almost immediately it is a day for just
loafing. Or you may awake feeling super and up to a special task that you
have been saving for a good day. The important thing is to learn to trust
your own feelings and go with them.
Don't take on more
than you can handle comfortably and when you feel tired, QUIT. Remember,
energy is like money in the bank -- to be spent wisely. Repeated
overspending puts one in debt physically as well as financially.
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Pacing ourselves is one of the most important things we
all have to learn.
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There will, of course
be many occasions when you may want to expend a little more physical energy
than usual. These could range from washing windows to enjoying sex.
It is good for us to
try to extend ourselves, if it is done with a little common sense. Here are
a few suggestions that will help.
1. Wait until an hour or more
after eating. Digestion draws blood, with its oxygen, away from muscles
leaving them less able to cope with extra demands. This is the very same
reason that children are taught not to go swimming right after meals.
2. You may find you feel your best soon after taking your medicine or having
breathing treatment.
3. Those who
have had an aerosol inhaler prescribed by their physician can use it to
help a special effort, being careful NEVER to use more than prescribed.
4. Pace yourself and don't rush.
5. If you feel breathless, use
pursed lip breathing. Remember -- this really helps and you can do it
anytime, any place.
Don't permit yourself
to be overburdened either by possessions or old habits. You will be amazed
when you learn how many energy wasters you can eliminate with no noticeable
loss.
It is important to
remember that each COPD patient is unique. No two have exactly the same
needs. You will find here some suggestions which will help you greatly and
others which may seem nonsensical to you. All we can say is that each
helped one or more of us.
WAKING
UP
This is always a
difficult moment for some folks and if you are not feeling up to snuff, it
can be a real chore. Some hints:
- Soft music is more
pleasant than an alarm if you are easily startled.
- Try some stretching and
relaxing exercises while still lying down. These do help to get your
body in gear for the day as every cat in the world knows.
- Making a bed is one of
the most demanding of household tasks, and if you must do it yourself,
try this: half make your bed while you're
still in it. Pull the top sheet and blanket up on one side and smooth
them out. Exit from the unmade side, which is then easy to finish.
- If you find that a
bedspread is an unnecessary frill which only adds work, leave yours
off.
- An aid to making your bed
while still in (or on) it is to mark the center
of each sheet and blanket in a small permanent way, such as with a colored stitch or pen mark, on the top hem. While
you are still sitting on your bed it is easy to line up the marks in
the center. When you do get up everything
will be in the right place.
- Before getting all the
way up, however, it is a big help to do some of your dressing sitting
on the edge of your bed. Every night leave your robe and slippers or
shoes, socks, and underwear where they are easy to reach in the
morning. This will require less effort and help to keep you warm if
your room is on the cold side.
- Incidently, if you share quarters
with another person, persuade him/her to let you have the bureau
drawers which are easier to reach- saves bending.
- If you have a room to
yourself, make it a habit to put most often used items such as socks
and underwear in the most convenient places and seldom used things in
the far-away bottom drawers and top shelves.
BATHING
- If for some reason you
find a shower or bathtub too demanding, a great solution is to get a
bath stool. This is waterproof and goes right into the tub. It can be
removed easily and make a nice seat when giving yourself a pedicure or
just drying your feet and legs. For bathing, use a hand spray which
may be attached to the tub faucet or shower head. You may find bathing
this way so pleasant that you will wonder why you didn't always do
this.
- A nice, long terry robe
will eliminate the effort of drying altogether, just blot.
- When excess humidity
bothers you, leave the bathroom door open and be sure to use your
bathroom exhaust fan if you have one. If you feel weak, don't take a
bath or shower when you are alone.
- It is not necessary to
get wet all over, all at once to be clean. A "basin bath"
can be taken in place of a tub bath and is a lot less taxing.
- Those using oxygen
through a long tube may find it makes bathing easier if the tube is
passed over the shower curtain rod and thus out of the way.
- Shaving or making up is
much easier if you have a low mirror so that you can site down while
doing either.
- Incidently, it is OK to remove the
nasal cannula briefly to wash your face,
shave or apply makeup.
GROOMING
- Many of us find that B
scents are irritating and unpleasant. Try to avoid toiletries that are
too heavily perfumed. These may leave you and your friends gasping.
- Women are advised to
avoid elaborate hairdos which will need tiresome setting and extended
use of hand-held blowers and dryers. ( Men
too!)
- Also, MOST IMPORTANT, we
are in agreement that the use of all kinds of aerosols and sprays,
except those prescribed by a physician, is a bad idea. We all have
sufficient respiratory problems without adding to them by inhaling
unknown substances. Many sprays may be alright, but why take chances?
There are many good liquid or gel type hair dressings, and the roll-on
or solid deodorants are excellent. Some of these products are now
available unscented.
- If you are troubled by
occasional accidental loss of urine brought on by coughing,
overexertion or stress, the small flat sanitary pads with adhesive
backs may be useful in keeping neat.
DRESSING
Quite a few of us
feel that it is a good idea to finish dressing before breakfast. It gets
the day off to a good start.
- We all have personal
tastes in clothing but there is one consideration which affects most
COPD people. It is a bad idea to restrict chest and abdominal
expansion. For this reason, belts, bras, and girdles that are tight
should be avoided. Fortunately, we live in an era where "anything
goes" clothing wise; if a choice must be made between style and
comfort, opt for comfort every time.
- Men may find that
suspenders are more comfortable than belts.
- Most women find that
slacks and socks are much easier to put on than struggling into panty
hose. Both sexes, however should avoid socks and stockings having
elastic bands which may bind the leg and restrict circulation.
- You can place your
underwear inside your pants and put them on together.
- Almost all of us prefer
slip-on type shoes -- no bending over to tie the shoe lace! Putting on
any kind of shoe is made much easier if you use a long ( 12"-18") shoehorn.
- Women who have given up
bras may find camisoles a comfortable and pretty substitute. Another
alternative is to try a sports bra for firm, yet soft, support. An
advantage to these bras is that they are made of materials which keep
you cool and wick perspiration away from the body. If you are a woman
who has given up girdles -- ENJOY!
- Both men and women should
avoid tight neck bands. Although some gentlemen still prefer neckties,
an open neck with a loosely tied scarf, kerchief or bolo, is both
attractive and much more comfortable. Another option is a colored T -- shirt under an open neck sport shirt.
For more formal occasions, a clip-on tie is a good compromise between
formality and comfort.
- Many of us are bothered
by extremes of temperature and may find that cotton underclothing is
more comfortable than synthetic. Some nationwide mail order houses
carry complete lines of cotton undergarments including
"vests" for women.
- "Long johns"
are back in style for both sexes. Some of the new colored
varieties, originally made for skiers, are quite attractive. They are
most comfortable when worn under wide legged slacks.
- If you are not too active
and sit a lot, a large shawl is really great for occasional shivers.
It is much easier to put on and to take off than a sweater. The men
should be reminded that President Lincoln often wore a shawl, even in
public. After all, a shawl is nothing more than a loose cape ( which F.D.R. often wore).
MEDICATIONS
- Those of us who take
pills and are also slightly forgetful have found that a pillbox with
separate compartment for each day of the week most useful. Your
druggist should carry them. However, if you are taking many pills, it
will be better to lay out a day's supply each morning. There are
several ways of doing this and here is one....
- Some fast food places
have little 1 oz. plastic cups with snap on lids for ketchup, etc. in
take-out orders. (Get your friends to save some for you.) Have one cup
for each pill-taking occasion during the day. Label or mark each cup
with the time and the contents to be taken. Keep them in plain sight
with a small clock near by and a pad and
- Other containers such as
egg boxes or cleaned plastic pill bottles with original labels removed
can be used in the same way. Something with a fairly snug cover is
preferable. Whatever you put them in, it is important to keep pills
away from heat and moisture.
- Whenever you get a new
medicine or a refill from the drugstore, figure how long it will last
and mark on the calender the time to reorder.
This may save you from running out of a necessary medication in the
middle of the night or on a holiday weekend.
- NEVER USE
ANYONE ELSE'S MEDICINE!!!!! Nowhere is it more evident how different we all
are than in the medicines which help us individually. Two people may
have the same disease and the same symptoms and yet respond to the
same medicine in entirely different ways.
- This cannot be stressed
too Bly. Never hesitate to ask for more
information regarding your medicine or to tell your doctor when your
medicine does not seem to be working for you. Never make changes in
the dosage unless your doctor agrees. Keep a record of medicines that
don't agree with you. It is easy to forget. In addition to swallowing
medicines, many of us must also learn to inhale them.
RESPIRATORY
THERAPY
- If
it is necessary for you to take breathing treatments at home, try to
get all of your equipment together in a convenient place where it can
be left from treatment to treatment. Being near a bathroom or kitchen
where it would be easy to clean equipment is helpful, but, of course
if you take treatments during the night, the first consideration may
be to have your equipment near your bed.
- An ideal arrangement is
to have a small table with a drawer or a flat topped desk in front of
a window. Outside the window might be a good place to put a bird
feeder. It is nice to have something to watch, read or listen to while
taking a treatment. One word of caution, when you are finished, don't leave any medication sitting in the sun.
- You may find it difficult
to listen to anything with a machine going. A radio or TV set with a
small earphone attachment will solve this problem.
- Have
a small clock handy to time your treatments.
- If
you must measure a medication with an eye dropper, be sure there are
no air bubbles in it before starting to measure.
- An excellent place to
store small pieces of equipment such as tubes, medicine cups and
mouthpieces is in one or two food storage boxes with lock tops. A good
size is about 6" x 8" x 2 1/2". These will fit in a
small drawer out of sight and parts that need sterilizing or soaking
can be done right in the container.
- All
equipment should be kept clean and should be sterilized as directed.
Don't worry if your friend has been taught different methods to do
this. It seems to be like making a mint julep -- several different
recipes but the same end result.
- When you disassemble your
equipment to clean it after a treatment, you may find the plastic hose
is difficult to pull loose. Try pulling it off while the machine is
still running. The added "push" of the compressor will help
loosen the hose.
- If
you are using a mechanical nebulizer and
feel that you are not getting enough mist, check the hose coupling.
Occasionally vibrations cause these to work loose. Just hand-tighten.
- Any
small piece of equipment with a motor or compressor will be much
quieter if you put some kind of thick pad under it. Folded fabric or
newspaper may suffice.
- Some
of these machines have a small air filter which should be changed once
in a while. Ask your supplier to give you some. They are easy to
change.
- Last
but not least -- most medical equipment used at home can be purchased.
In many cases this may be cheaper than monthly rental, but you will be
responsible for repairs. Ask your supplier and compare.
OXYGEN
Those of us who use
oxygen recommend your supplier to come visit you to explain all the
technical aspects of your equipment's operation. Get their emergency phone
number and procedures to follow in case of technical questions or concerns
about the equipment. However, since oxygen itself is a prescribed drug,
questions about amount and usage are for your physician to answer.
- Some
portable oxygen units (oxygen walkers) come equipped with a loose
scale on the side for measuring the weight of the liquid oxygen. Those
who use this type of system over a period of time often learn to
estimate the weight fairly accurately. In this case the scale can be
removed, leaving a leather loop with snap in place. The oxygen tubing
can be threaded through this loop to eliminate some of the strain on
the point of attachment of the tube to the pack. This helps prevent
the tubing from being accidentally disconnected. The same method can
be used to temporarily shorten the tube by looping it through several
times.
- It
is important to find out approximately how long each portable unit
supply will last you specifically. Learn to time your outings so that
you don't run short.
- If
you have been out with a portable liquid unit and have returned home
with no immediate plans to go out soon, you can transfer your long
house tubing to the portable unit to use up the remaining oxygen it
holds. This utilizes oxygen which would otherwise leak away.
- When
using oxygen, try to inhale through your nose ( a
good idea anyway). Inhaling through your mouth can be very drying, and
some of the oxygen may be wasted.
- Change
nasal cannulas fairly often particularly if
the prongs become soiled or uncomfortable. In many places they are
free from your suppliers.
- Don't
be embarrassed by the occasional attention your oxygen unit and tubing
may attract. Most people know what they are and give them no more
thought than a hearing aid. Others, who may not be familiar with this
equipment, are interested in learning what it is. They appreciate your
taking the time to explain what it does and why you must use it.
WORK AT HOME
OR ABROAD
This is where some of
us temporarily bog down. Each COPD person must find his/her own work ethic.
Just remember this: nowhere is it written that any job must be finished as
fast as possible. Many good books and paintings have been literally years
in the making. If you don't feel like building a World Trade
Center
today, how about trying to lay a couple of bricks?
Most jobs, excluding
prize fighting, call for some skill which may be useful in a less physical
way than is common practice. Very few Respiratory Club members hold full
time jobs, yet here are some of the part time jobs they do perform:
management consulting; newspaper, radio and TV publicity; lobbying for a
worthy cause; bookkeeping at home for a small neighborhood
store; mechanical and electrical designing; handcrafting gifts to sell;
telephoning and doing mailings for a political party -- the list goes on.
There are as many different things that we can do as there are people. This
includes you. Don't be afraid to start small. It sure beats not starting at
all.
While you are
planning a new mini career, the housework piles up. Our Respiratory Club
hints to make it easier fall into four general groups. The first of which
is...
LIFTING
AND TOTING
- Get
yourself a small utility cart, the kind with three shelves. As you
move about doing chores, use your cart to carry everything needing
transferral from one place to another.
- Pick
up last night's newspaper, some soiled clothes for the laundry, a
couple of used dishes, books to go back to the library, clean towels
for the bathroom, etc. Try to travel in a circle and avoid going back
and forth.
- Using a cart and working
in a circle is very effective whether you live in a single room or a
two story house (have a cart on each floor).
- If
you do have a single room or a small apartment it is especially
important to maintain reasonable order. Living in untidy quarters can
be very depressing. Try to stay on top of things and create a pleasant
ambience for yourself. It will make you feel better.
- Carrying
things downstairs is not a problem for most of us. Carrying them up
may be a different story. There is one way: On an exhale, lift your
burden two or three steps and put it down, rest. Climb two or three
steps, rest again. Repeat. This may be a little slow, but it is
possible to do the job without knocking yourself out.
- If
you live where you must climb stairs, you might consider a mechanical
chair lift, but they are very expensive. In any case, it is a good
idea to have a chair to sit on or a table to lean on when you reach
the top.
SOME
CLEANING TOOLS
- One
of the handiest of gadgets is a pair of pickup tongs (these look like
giant scissors) used for retrieving things from hard to reach places.
Most medical supply houses stock these.
- There
is also a type of pickup tongs which expands in criss-cross fashion.
They are made up of metal or wood and make it possible to pick up very
small objects without bending. Marvelous,
but hard to find. If you are lucky enough to find them, try slipping a
small piece of rubber tubing over each end; this makes it easier to
grasp things.
- Another
pickup device is a magnet on a short string. This will stick to your
cart so you will always have it with you. Great for thumbtacks, lost
hairpins, etc.., but no good, alas, for brass pins.
- If you must use a vacuum,
which is not such a great idea, at least use a machine with a
disposable bag and remove with extreme care. It is hard to imagine
anything more irritating to lungs than shaking out a dust bag. A small
hand vacuum is easy to use for spot cleanups and can stay on your
cart.
There are now vacuum cleaners available
which have better filtering methods to keep dust from escaping from the
machine once it has been vacuumed. Ask around at a large department store
or specialty stores in your area.
- Sweeping
and feather dusting are out, for obvious reasons, but if you feel
compelled to use a broom or dry mop, protect yourself by wrapping the
working end in a damp cloth.
- A
damp cloth for dusting is also good but if you hesitate to use one on
wood furniture, here is a good disposable duster you can make for
yourself. Get a roll of crinkly paper towels and a bottle of lemon oil
from a hardware store. Tear towel in sections and fold in quarters,
put about 4 or 5 coin sized dots of oil on each towel and roll up
tight. Store in a plastic bag or glass jar. Use and throw away.
- Even
with precautions, housework is apt to stir up dust. If you must do a
dusty job, the best idea is to use a mask.
- Around
the house the "no aerosol" rule applies with no "ifs,
ands or buts." Don't even think of inhaling oven cleaner or
bathroom cleaner, any of which may contain lye, ammonia or other
"goodies"!
- Avoid
using anything harmful that can vaporize, such as kerosene, mothballs
and solvents. Avoid, also, as far as possible, powders; if they must
be used, handle with extreme care.
- Have
good ventilation and an adequate supply of fresh air at all times.
IN THE KITCHEN
- Don't
try to get everything done at once, set smaller goals. Almost all jobs
can be divided into sections. For instance -- clean the top shelf of
the refrigerator today and the bottom shelf tomorrow or next week.
Take comfort in the thought that the longer you put a job off, the
longer it won't need redoing.
- Plan
your meals when you are neither hungry nor tired. Light, well balanced
meals are too important to leave to impulse.
- The details of diet
planning vary for each person and are too complex to go into here. One
thing, however, is true for all of us with COPD. A number of small
meals is always better than a few large ones.
Common sense tells us that the more room the stomach takes up, the
less room there is for air in the lungs. Also, as previously
mentioned, prolonged digestion draws blood and oxygen to the stomach
and away from other parts of the body which may need them more.
- Utilize
convenience foods when desired, but remember that many packaged foods
have high salt and sugar contents which may be banned if you are on a
special diet. Learn to read labels.
- Keep plenty of water
and/or fruit juices in the refrigerator.
- If you enjoy cooking, it
is often almost as easy to make double or triple amount of your
specialties. Freeze the excess in meal-size containers and enjoy some
cook-free meals when you feel like a day off.
- If
you can afford one, a microwave oven may prove a boon in reducing
kitchen time and temperatures. A slow-cooking electric crockpot may make things easier, too.
- When cooking, always use
your exhaust fan, or make sure there is good ventilation.
- If you are bothered by
the heat, try using a small portable fan when cooking or ironing. In
fact such a portable fan is useful in any room, not only to cool you
off but also to help overcome shortness of breath brought on by
exertion or stress. It is also useful for blowing all sorts of
offensive or irritating odors away from you,
should the need arise. A portable fan may deserve a place on your
"supply wagon."
- When tidying up after a
meal, assemble all items which need putting away in one spot. Then sit
down and put them away.
- Put your most used pots
and pans back on the stove and leave them there and instead of putting
your dishes and silver away, reset the table for your next meal.
GARDENING
- If you enjoy gardening
(and have a yard!), there are ways to make it easier. The first is
obvious -- a riding mower, preferably with a self starter. This can be
a real morale booster.
- The
second is old fashioned but good -- a small
floral or scuffle hoe. These are light and easy to handle. Cut down
weeds while they are still small and leave them where they fall, good
mulch.
- Some
other easy-to-handle, lightweight tools are a floral rake which is
about 7" wide; a three-pronged cultivator with a handle about 3'
long and a nylon garden hose which rolls up flat on its own reel. One
of these hoses, 50' long with its reel, weighs only 2 1/2 lbs. And can
be carried in one hand.
- Another
great boon to some gardeners is a folding stool. If bending over cuts
off your wind, try gardening sitting down. Use a long handled spear
type weeder, a clam rake about 18" long
for leaves and your pickup scissors or tongs which are useful for
removing gardening debris from the ground. These few short hand tools
and the aforementioned folding stool can all be carried in a shallow
garden basket.
- Here's
how to make an easy flower garden. In the fall, gather as many seeds
as possible from easy to grow hardy annuals. In the spring, sow (each
kind separately), scattering by hand in prepared beds. Rake in and
tamp lightly. When they come up, hoe down all but a few. What is left
will give you a nice display without the hard work of transplanting
seedlings.
- If
you live where there is no space for your own garden, you may be able
to have a window box or several shelves for plants inside the window.
Even in a limited space, growing things can be one of the most
rewarding pursuits there are.
- It
is important to know if you are allergic to the things that you grow
in your garden and lawn. If you are and don't want to give up your
gardening, use a dust mask when you work.
GOING
OUT
- This
is a good place to repeat that all COPD people are different in many
ways. One way is in our reactions to weather. Some like it hot, some
like it cold, some damp, some dry. The point is that if it is your
kind of day, try to get out and enjoy.
- One
thing which does bother us all considerably is air pollution. Find out
where you can get a daily air quality report from your area and use it
when making your plans for the day.
- Before
going out, however, it is a good idea to make preparations for your
homecoming. Of course, we should learn to stop whatever it is we are
doing before fatigue sets in, but sometimes this is easier said than
done, particularly when away from home. At a time when you are the
most apt to be tired, it is lovely to come home and have nothing to do
but relax.
- Before
leaving, lay out your comfortable clothes and slippers,
leave a drink in a handy thermos, set out whatever utensils you will
need for your evening meal, even turn down your bed for a quick nap,
whatever makes you feel good. Then homecoming can be more than just a
relief, it can be a real pleasure.
- Try
to get yourself a warm, lightweight coat for winter. Down is ideal. A
heavy winter coat can wear you out before you are out the front door.
- In
cold weather, also wear a nice long, warm scarf, and if it gets too
cold or windy, do not hesitate to wind it across your nose. Some of
us, however, prefer a cold-weather mask. There is one being made now
of soft sponge which is quite comfortable to wear. Mask or scarf is a
personal choice, either has merit.
- Those
of you who do consider outdoor walking may find that a cane seat or
shooting stick is a real help. It gives you a cane to lean on and a
small seat if you feel like resting.
RIDING
AND DRIVING
- If
you have trouble getting from spot A to spot B, it matters not whether
the problem arises in your legs or your lungs, you do have trouble
walking and are entitled to a "handicapped" parking permit.
It is simple to obtain in most places. Write to your State Motor
Vehicle Department for an application. Get one and use it. When you
use a "handicapped" parking space make sure you display your
permit; not only is this required by the law in many states, it may
help persuade the weight lifters and other robust types that they are
illegally parked in an area reserved for the handicapped.
- If
you travel with someone else and know you may have to sit in the car
for fairly long periods of time, make up a kit of helpful things for
yourself and keep it in the car. In a shopping bag, for instance,
include a small lap robe, pad and pencil, a paperback or two, (poetry
is ideal if you like it), tissues, a package of pre-moistened wipes
and whatever else suits your fancy. It also helps to carry a large
piece of cardboard to use as a sunscreen if necessary.
- A coffee can with a snap
on plastic lid makes a dandy emergency urinal.
- If
you do drive and find that you must put gas in your car yourself, try
to get upwind from the pump so that you do not gas yourself as well as
the car.
- It
is an excellent idea for any driver to have a CB radio in the car to
use if it is necessary to call for help in an emergency. For people
with breathing problems it may be an absolute necessity. Try to
imagine changing a tire, walking to the next off-ramp to call for help
or hiking a long distance carrying a can of gas and you'll know why.
- When
driving, practice doing breathing exercises while waiting for red
lights to change -- it beats fuming. Indeed, you should take a couple
of minutes or even seconds to do breathing exercises whenever you come
to a natural stopping place, a red light, a TV commercial, end of a
chapter in a book or "whatever" -- like now!
TRAVELING
- If
you plan an intercity trip, think of taking a bus. They do have
advantages, including generally landing you in the middle of town
where there is other local transportation available -- not out in the
boondocks somewhere. On interstate buses, the federal smoking laws are
generally observed and the drivers are most helpful. Sit in the front
and if you have any special problems, tell the driver.
- When
you must travel alone, travel light. Get a small suitcase on wheels.
There are also wheeled suitcase carriers. They are good but somewhat
clumsy and just one more thing to carry around.
- Those
of us who have to travel on subways recommend staying out of them if
at all possible. Most subways and elevated train lines can only be
used by making long and exhausting stair climbs. This may be made many
times more difficult by being caught in rush hour crowds which force
you to move faster than is comfortable.
- In
addition, the air in many subway systems leaves a lot to be desired.
- All
in all, subways can provide a very threatening environment for anyone
with respiratory problems. We all Bly advise
sticking to surface transportation wherever it is available.
- As
a result of the Americans With Disabilities
Act, many communities are reevaluating the
accessibility of their public transportation and providing free,
low-cost, or special-arrangement transportation for the elderly or
physically challenged.
- Whenever
possible, avoid any kind of travel during rush hours. It is pleasant
to be able to move at your own speed and with a little luck get a
seat.
- Traveling
with oxygen and traveling on planes are two
subjects well covered in other places. Ask your local Lung Association
or your oxygen supplier for information.
SHOPPING
- If
you are going shopping with an oxygen carrier, try to find a shopping
cart on your way into the store. Put your oxygen pack in the cart
while you shop.
- When
you go shopping try to pick an off day and hour (not Friday or
Saturday at high noon). This way you will be able to move at a
leisurely pace and avoid being jostled.
- It
is also helpful to stay out of all sorts of crowds, particularly
indoors. Aside from the fact that the air may be smoky and generally
unpleasant, you run a high risk of having someone sneeze or cough in
your face.
- Don't
be afraid to ask someone to stop smoking near you. We all have a right
to breathe smoke-free air, as most people are beginning to realize.
- In
many areas there are "no smoking" laws. Familiarize yourself
with these and if you are in a store or restaurant where these laws
are not observed, speak to the manager. Don't forget,
you are the customer and are doing the proprietor a favor by being there.
- Shopping
for clothing, especially dresses and slacks, can be exhausting even to
one in the best of health. Know your measurements (write them down)
and carry a small rolled up tape measure with you. If you see
something you like, check with the tape to see if it will fit you
before you buy. Have an understanding with the store that if it isn't
satisfactory it can be returned.
- When
you have a fairly large grocery order, have all the "spoilables," such as frozen foods, packed in
a separate bag. When you get home, you can put away whatever needs
refrigeration. Leave the rest for later when you feel more energetic
or a "helper" can lend a hand.
- Incidently, it won't hurt to wash
your hands extra well when you get home. It is known that colds can
spread through hands as well as through the air.
It may be a good idea to carry a small tube of alcohol gel or
anti-bacterial hand wash for those times when bathroom facilities are few
and far-between.
REST AND
RECREATION
We all seem to be in
agreement that the most important and lasting pleasure any of us can have
is the company of good friends. The mobile society we live in often makes
it difficult to keep in touch with all acquaintances. Many of us live far
from our birthplaces and early ties, and sometimes feel that after a
certain age it is hard to start making new friends. THIS IS NOT TRUE.
- One
of the best ways to make friends with whom you can share common
interests and problems is to join a Respiratory Club. If you can't
find such a group, get in touch with your local Lung Association or
your hospital respiratory department.
- This
may be a good spot to stop for a moment and consider a matter of
special concern to those of us who live alone -- how to get help
quickly when it may be needed.
- The
phone buddy system can be a big help and provide a special feeling of
security.
- Make
arrangements to have a relative or a friend call at the same time
every day to make sure you are OK. If you plan to be out, let them
know ahead of time to save needless concern.
- Get
to know neighbors who can see your windows
and arrange a signal they can see. For instance if a shade is pulled
down every evening or a certain lamp is lit, it is a sign you're OK.
If this isn't done, ask your neighbors to
investigate.
- If
you live in an apartment, let the neighbors
on all sides of you know that if they hear you pounding you need help.
- Somewhere
near you is someone who needs your friendship and help too. Once you
have gotten in touch with others, you will be amazed to find how
rewarding it can be.
- Consider
buying a cordless phone and carrying it around with you in your cart
or in a small pouch. This way, if you run into trouble, you will have
a phone readily available to summon help.
- Many
companies now offer monitoring services. They provide a "panic
button," worn on a chain around the neck, which can summon
emergency help.
- Alone
or with company, there are many entertaining things to do at home
besides watching TV. Many are more fun; here are a few:
- Something
that many of us have forgotten about are
board games. There are probably some around your house that have not
been used in a long time: Checkers, Parcheesi, Monopoly, Scrabble,
etc. There are also dominos and many two-or-more-handed card games
such as whist, pinochle, rummy or canasta.
- If
you are a chess buff, you might enjoy joining a chess club. It is also
fun to play games through the mail or over the phone or Internet.
- It
may sound antisocial, but to many, solitaire can be very relaxing.
There are several paperback books of solitaire games. Try learning a
new game or two.
- Jigsaw
puzzles can also while away many hours and provide a real sense of
accomplishment when done.
- Do
you like to read? Build up a supply of paperbacks for days when you
can't get out to the library. Many libraries have a free paperback
swap shelf. If yours doesn't, ask the librarian to start one. You can
also get good books cheaply at flea markets or garage sales. Also try
swapping with friends, neighbors and
relatives. If you can't get out, find out if your library has a home
delivery service -- many do.
- Computers
are really useful tools for keeping in touch when you are unable to
leave your home. If you have Internet access, you can e-mail your
friends and relatives, join on-line support groups and chat rooms, do
research, take courses and read books on-line, and even order goods
and services without ever having to leave your home (or even your
desk)! Even if you don't have Internet access, you can load games onto
your computer and while away the hours playing. Most of the games
mentioned previously have conmputer
versions, and now you don't even need another person or other persons
present to play: the computer can fill in the empty seats.
- Is
there something you have always wanted to learn? Now is the time. Many
local schools have adult classes in the evening on a staggering
assortment of subjects. If you prefer to learn in the relaxing
atmosphere of your home, there are literally hundreds of
correspondence or online courses to choose from, from bookkeeping to
weather forecasting.
- If
you have always wanted to learn a language there are good home study
courses with records. This is more fun if you find someone to practice
your new language with. A telephone pen pal might be just the thing.
- If
you find your previous hobbies too demanding, try a scaled-down
version for the time being. Cabinet makers may find great pleasure in
the growing hobby of making scale model furniture; machinists might
enjoy making a scale model locomotive or assembling a clock; a
dressmaker could make and dress period costume dolls.
- Is
a superactive dog too much to handle? Try a
small, quiet cat. If allergies forbid either, tropical fish, while not
very affectionate, are beautiful and fascinating. A bird feeder near
your favorite window can provide hours of
pleasure. If, for some reason, all of these are out, a large stuffed
critter has its uses as a confidant, punching bag or pillow. Make sure
you are not allergic to furry pets. If so, it may be best to do
without them.
- Needlework
of all kinds gives many people both relaxation and pleasure. You men, don't forget Rosie Greer and his needlepoint.
It is also a fact that at least half of the world's champion knitters
and crocheters have been men. Try it, you
may find you like it.
- If
you like to paint, try watercolors for a
change of pace. They are lightweight if you want to go sketching, odorless and dry fast. To develop a technique for
using them, try some new coloring books for
adults. These are really great for everyone, not just artists.
- This
may be a good time to learn to play a musical instrument; piano or
guitar for instance. The wind instruments are out -- no tubas!
- Nowadays
almost anything you could possibly want to buy can be purchased
through the mail or through the Internet. So, "let your fingers
do the walking" not only through the phone book but also through
a whole world of mail order catalogs and
online. Many pleasant evenings can be spent sitting in your favorite (not too soft) easy chair and shopping.
As mentioned previously, the Internet revolution has made it possible
to purchase all sorts of goods and services by computer.
- There
are many, many other suggestions we could make, but the aforementioned
will give you some ideas.
TO BED
- Go
to bed in easy stages so that you arrive there relaxed, not worn out.
For example, put on your night clothes and a comfortable robe, then
read or watch TV for awhile.
- Plan
your sleeping area so that everything you may need will be handy. The
most important things being a light and a telephone. Have any
emergency numbers you think you might need taped to the phone and easy
to read.
- Other
helpful things are: a clock radio with an ear plug for late night
listening if you have a sleeping companion; medication as need be; a
glass of water and a small snack if you are so inclined; and a urinal
in a safe and easy to reach place. (Little known fact, there are also
urinals made for women.)
- An
electric blanket is a must. No other blanket is necessary. They are
lightweight, comfortable, and make bed making a cinch.
- Some
sort of night light is a real necessity. It lessens the possibility of
being disoriented if you waken suddenly and helps you locate things
you may need in a hurry.
- There
is now a light which throws the time on the ceiling and numerous small
lamps which plug directly into a wall outlet. Watching a lava light may also serve to relax you and make
you go to sleep. Best of all is a lighted aquarium which, in a
darkened room, is absolutely enchanting.
- Some
find this a perfect time to do some muscle relaxing exercises.
- Pull
your night cap (no kidding) down over your ears, say your prayers if
so inclined, and go to sleep.
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